Hug Your Kids – For Rare Disease Day

Addi and Cassi Hempel, who are battling Niemann Pick Type C AKA Children's Alzheimer's

When a child has a rare disease, it’s tough on them and their whole families. It’s hard to find doctors to diagnose and treat them, there often aren’t medicines, protocols or special equipment to make their lives easier or cure them, and  kids can feel “weird” when they just want to fit in.

To help these kids, and their families, there’s a great group called the Children’s Rare Disease Network. The beauty is, when kids with rare diseases come together, they and the public see that they aren’t so rare! Feb. 28 is World Rare Disease Day, and many groups are coming together, helping to raise awareness.

Chris and Hugh Hempel introduced me to the CRDN through their beautiful 6-year old twins Addi and Cassi. Check out for their story.

Please hug your kids and spouse / partner today, just because you can!


Leave a comment

Filed under parenting, work-life balance

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s